DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.compose your message
message sent
email sent successfully
Trusted Resources: Community Center
Online groups, photo galleries and blogs
A Sickle Cell Warrior Survival Story— Timi Edwin
“When I was 10, I was flogged by a teacher because I didn’t do an assignment. I fainted… That episode became the beginning of the worst years of my life”. More Sickle cell Warriors like Timi Edwin are telling their stories and, reshaping the sickle cell narratives. Read this sickle cell survival story from Timi Edwin, Founder of Crimson bow.
How Did You Discover You Had Sickle Cell?
My parents discovered that I had sickle cell when I was 1 year old, but I didn’t really know what it meant and how it impacted my life till I was 10 years old. This does not mean that I didn’t have pain episodes and illnesses before that age, I did, I only felt and realized the full impact (pain, stigma, depression) from that age.
Related Content
-
Community CenterToday’s Faces of Sickle Cell Disease: Deidra Flowers-WilliamsAt six months of age, Deidra Flowers-Wil...
-
videos & visualsSickle cell warrior documentaryhttps://www.youtube.com/watch?v=ZxC4vtN2...
-
people & placesModupeoluwa BabawaleMs. Modupe Babawale is a passionate warr...
-
Community CenterLiving With Sickle Cell: ‘I Don’t Know What It Means to Be Without Pain’Once a month, she undergoes a grueling p...
-
videos & visualsHertz Nazaire ( Finding Your Colors ) Adult Coloring Bookhttps://www.youtube.com/watch?v=u5y8BIdE...
-
Community CenterMy Story: “Any Day Without Pain Is a Good Day!”At 32 years young, Shakir Cannon is not ...
-
Community CenterToday’s Faces of Sickle Cell Disease: Wanda Whitten-Shurney, MDWanda Whitten-Shurney is a pediatrician,...
send a message
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.